Patients' perspectives, experiences, and concerns with perianal fistulae: insights from online targeted-disease forums

Published in: Crohns Colitis 360, Vol. 5, No. 4 (November 2023)

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By Carine Khalil, Welmoed K van Deen, Taylor Dupuy, Gaurav Syal, Corey Arnold, Susan E Cazzetta, Pradeep P Nazarey, Christopher V Almario, Brennan MR Spiegel
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Perianal fistulae can undermine physical, emotional, and social well-being in patients with Crohn's disease and are challenging to manage. Social media offers a rich opportunity to gain an in-depth understanding of the impact of perianal fistulae on patients' daily lives outside of controlled environments. In this study, we conducted social media analytics to examine patients' experiences with perianal fistulae and assessed the impact of perianal fistulae on patients' behavior and overall well-being.

doi.org/10.1093/crocol/otad073 PMCID: PMC10693318